AFB Senior Site
1-800-232-5463
seniorsite@afb.net
http://www.afb.org/seniorsite
Designed to help older Americans recently diagnosed with eye diseases, and their family members cope with the changes that accompany vision loss.

American Academy of Ophthalmology
P.O. Box 7424
San Francisco, CA 94120-7424
(415) 561-8500
http://www.aao.org

American Autoimmune Related Diseases Association, Inc. (AARDA)
22100 Gratiot Avenue
E. Detroit, MI 48021
(586) 776-3900
1-800-598-4668 (Literature Requests)
http://www.aarda.org
Dedicated to bringing a national focus to autoimmune diseases, conditions caused by the body attacking itself.

American College of Medical Genetics (ACMG)
9650 Rockville Pike
Bethesda, MD 20814-3998
Represents the medical genetics profession dedicated to making genetic services available to and improve the health of the public.

American Council of the Blind
1155 15th Street, NW, Suite 1004
Washington, DC 20005
1-800-424-8666
(202) 467-5081
http://www.acb.org
Serves as a national clearinghouse on blindness issues for individuals, organizations, and institutions.

American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001
1-800-232-5463
(212) 502-7600
http://www.afb.org
Serves as a one-stop information and referral resource for people who are blind or visually impaired, the people who work with them, and the general public.

American Society of Ocularists
P.O. Box 608
Earlysville, VA 22936-0608
1-866-973-4066
(434) 973-4066
http://www.ocularist.org

AWARE
P.O.Box 996
Mohegan Lake, NY 10547
(914) 528-5120
info@visionaware.org
http://www.VisionAWARE.org
Provides extensive self-help information on adapting everyday activities and locating helpful services and independent living resources -- for individuals with vision loss, their family members, and those who work with them.

Centers for Disease Control and Prevention (CDC)
U.S. Department of Health and Human Services
1600 Clifton Road, NE MS D-25
Atlanta, GA 30333
1-800-311-3435 (Office of Communications)
(404) 639-3534
http://www.cdc.gov
Promotes health and quality of life by preventing and controlling disease, injury, and disability.

Eye Bank Association of America
1015 Eighteenth Street NW, Suite 1010
Washington, DC 20036
(202) 775-4999
http://www.restoresight.org
Establishes medical standards for evaluating and distributing eyes for corneal transplantation and research.

Graft vs: Host Disease - - Bone Marrow Transplantation - -
http://www.sclero.org/medical/symptoms/associated/similar/graft-vs-host-disease/a-to-z.html

http://www.lymphomation.org/bmt-gvhd.htm

http://www.marrow.org/PATIENT/Plan_Life_after_Tx/Managing_Long-Term_Effects_of_/Graft-Versus-Host_Disease/index.html

Institute for Families
P.O. Box 54700 Mail Stop 111
Los Angeles, CA 90054-0700
(323) 669-4649
http://www.instituteforfamilies.org
Offers support and information to families of children with visual impairment.

Keratoconus Support Organizations
http://www.kcsupport.org/index.html

http://www.kcfreedom.org/ http://kcglobal.org/content/blogsection/2/52/

http://dailystrength.org/support-groups/Ears_Eyes_Mouth/Keratoconus

Knights Templar Eye Foundation
1000 East State Parkway Suite I
Schaumburg, IL 60173
(847) 490-3838
http://www.knightstemplar.org/ktef/
Knights Templar Eye Foundation provides assistance for eye surgery for people who are unable to pay or receive adequate assistance from current government agencies or similar.

Lighthouse International
111 E. 59th Street
New York, NY 10022
1-800-829-0500
(212) 821-9200
(212) 821-9713 (TDD)
http://www.lighthouse.org
Serves as a national clearinghouse for information on vision impairment across the life span including specific services for children and seniors sources.

Lions Clubs International
300 W. 22nd Street
Oak Brook, IL 60523-8842
(630) 571-5466
http://www.lionsclubs.org
Provides financial assistance for eye care to individuals through local clubs.

March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
(914) 428-7100
http://www.marchofdimes.com
Develops and distributes health care materials for health professionals and the public on genetic and congenital diseases and disorders.

National Association for Parents of Children with Visual Impairments
P.O. Box 317
Watertown, MA 02471
1-800-562-6265
(617) 972-7441
http://www.spedex.com/napvi/
Offers emotional support for parents of blind or visually impaired children.

National Cancer Institute (NCI)
National Institutes of Health Public Inquiries Office,
Suite 3036A 6116 Executive Boulevard, MSC8322
Bethesda, MD 20892-8322
(301) 435-3848
1-800-422-6237
1-800-332-8615 (TTY)
http://www.nci.nih.gov
Conducts and supports research on cancer.

National Eye Institute (NEI)
National Institutes of Health
31 Center Drive MSC 2510
Bethesda, MD 20892-2510
(301) 496-5248
http://www.nei.nih.gov
Conducts and supports research on eye diseases and vision disorders.

National Graves' Disease Foundation
P.O. Box 8387
Fleming Island, FL 32006
(904) 278-9488
http://www.ngdf.org
To provide current medical information and referral and resource information to people with Graves' disease, a leading cause of overactive thyroid.

National Institute of Allergy and Infectious Diseases (NIAID)
National Institutes of Health
Building 31, Room 7A-50 31 Center Drive MSC 2520
Bethesda, MD 20892-2520
(301) 496-5717
http://www.niaid.nih.gov
Supports research aimed at developing better ways to diagnose, treat and prevent infections, immune system diseases, and allergies.

National Keratoconus Assistance Foundation (NKCAF)
2607 Rockefeller Lane, Suite 3
Redondo Beach, CA 90278
(714) 404-8690
info@nkcaf.org
http://www.nkcaf.org
Provides referrals to eye care specialists best qualified to provide contact lens fittings for patients with keratoconus. Offers financial assistance for treatments and surgeries.

National Keratoconus Foundation
8733 Beverly Blvd., Suite 201
Los Angeles, CA 90048
1-800-521-2524
(310) 423-6455
http://www.nkcf.org
Sponsors basic and clinical research as well as a public education program including self-help groups and seminars. Provides information to patients and eye care practitioners.

National Library of Medicine (NLM)
National Institutes of Health
U.S. Department of Health and Human Services
8600 Rockville
Pike Bethesda, MD 20894
1-888-346-3656
(301) 594-5983
http://www.nlm.nih.gov
Maintains the world's largest medical library collection and coordinates MEDLINE, a database of millions of references to articles published in medical journals.

National Marfan Foundation
22 Manhasset Avenue
Port Washington, NY 11050
1-800-862-7326
(516) 883-8712
http://www.marfan.org
Disseminates information about Marfan syndrome, a genetic disorder of the connective tissues in which dislocated lenses, cataract, and retinal detachment are ocular symptoms.

National Organization for Albinism and Hypopigmentation
P.O. Box 959
East Hampstead, NH 03826-0959
1-800-473-2310
(603) 887-2310
http://www.albinism.org
Educates teachers, health care professionals, and the public about albinism and hypopigmentation.

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue P.O. Box 1968
Danbury, CT 06813-1968
1-800-999-6673 (203)
744-0100 (203) 797-9590 (TDD)
http://www.rarediseases.org
Acts as a clearinghouse for information about rare disorders.

Ocular Melanoma Foundation (OFM)
P.O. Box 29261
Richmond,, VA 23242
admin@ocularmelanoma.org
http://www.ocularmelanoma.org/
Works to increase awareness, enhance education and research, and provide advocacy among both patients and health care professionals regarding ocular melanoma.

Sjögren's Syndrome Foundation (SSF)
8120 Woodmont Avenue, Suite 530
Bethesda, MD 20814
1-800-475-6473 (301)
718-0300
http://www.sjogrens.org
Provides support and education for people with Sjögren's syndrome and information to the medical community through local chapters. Publishes Moisture Seekers (newsletter) and The Sjögren's Syndrome Handbook. Distributes information on the complications of Sjögren's syndrome including dry eye (keratoconjunctivitis sicca).

Stevens-Johnson Syndrome Foundation
P.O. Box 350333
Westminster, CO 80030
(303) 635-1241
http://www.sjsupport.org
Provides information and support for people with Stevens Johnson syndrome and toxic epidermal necrolysis, skin and eye problems associated with adverse drug reactions. Encourages public awareness of adverse reactions to drugs.

USA Aniridia Network
Suite 101 PMB #109 1138 N. Germantown Parkway
Cordova, TN 38016 (901)
752-8835
http://www.aniridia.net
The USA Aniridia Network is a non-profit organization dedicated to assisting those with low vision or blindness due to aniridia, a genetic eye disease. Support services, educational and social programs, and medical conferences help people with aniridia, their families, teachers, employers, and the medical community.